How is the infoKID information produced?

All infoKID information topics are written in collaboration with healthcare professionals who support children with kidney conditions – including paediatric nephrologists, nurses, social workers, play specialists, surgeons and paediatric urologists.

The information goes through several stages of review to make sure it is accurate and relevant for families across the UK. All topics are reviewed by a professional medical editor.

This information provides guidance and supportive information only, and it is important that you contact your doctor if you are uncertain about the healthcare or treatment your child is receiving.

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Information you can trust

When infoKID was launched in 2013, we carried The Information Standard kitemark to demonstrate that we provide reliable healthcare information for the public.

The Information Standard was a certification scheme set up by the Department of Health, to help identify trusted sources of health and social care information. While the Information Standard assessment and certification scheme has now closed, all our resources were produced according to its guidelines.

To gain the Standard, we had to demonstrate that our information is:

Balanced and evidence-based

All information was reviewed over several stages by healthcare professionals working in children’s kidney health; where required, we identified scientific evidence.

User tested

All information was sent to a panel of parents and carers.

Regularly reviewed

We made a commitment to review all information every three years – or more often as needed – to make sure it is up-to-date and accurate.

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Thank you to the many children’s healthcare professionals and organisations who helped to develop the infoKID information.

This project would not have been possible without the support of:

  • The children’s kidney centres across the United Kingdom
  • The British Association of Paediatric Urologists
  • The British Association of Perinatal Medicine
  • The National Kidney Federation
  • The UKKA
  • The National Registry of Rare Kidney Disease (RaDaR)
  • NHS Blood and Transplant – paediatric subgroup of the Kidney Advisory Group
Download a diagram of how we produce each information topic

Please contact us if you are interested in translating any infoKID materials into another language. We will ask you to include this disclaimer (this is a translation of infoKid):


Information for parents and carers, from www.infokid.org.uk, regarding [condition] [version information]. The English information has been prepared by the British Association for Paediatric Neurology (BAPN) and Kidney Care UK. The [company/person] is responsible for the translation and adaptation to [country e.g. Hungarian] conditions.