Privacy Policy

Privacy Policy

Last updated May 2026

Introduction

The privacy and security of your personal information is extremely important to us. We want everyone who accesses our information, to feel confident and comfortable that any personal information they share with us will be looked after.

This privacy policy explains how and why we use your personal data, to make sure you stay informed and can be confident about giving us your information.

Kidney Care UK (infoKID) needs to keep certain information on those that access the site in order to carry out its day to day operations, to meet its objectives and to comply with legal obligations.

We are committed to protecting individuals’ personal information and privacy and ensuring any personal data is dealt with in line with UK General Data Protection Regulation (UK GDPR) and Data Protection Act 2018 (DPA). To comply with the law, personal information will be collected and used fairly, stored safely and not disclosed to any other person unlawfully.

We’ll never sell your personal data and will only share it with trusted third party organisations where necessary to maintain and improve the website and deliver our services.

If you have any questions, please contact our Data Protection Officer at [email protected]

1. Who we are

  • Kidney Care UK is the UK’s leading kidney patient support charity, a registered charity (charity number 270288 in England and Wales, SC048198 in Scotland) and a company limited by guarantee (company number 1228114).
  • We are committed to improving the quality of life for kidney patients and their families by providing practical, emotional and financial support, working to improve the quality and access to health and care services and campaigning for change.
  • If you are a visitor to the infoKID website, we are the ‘data controller’ and determine how and why your data is processed. We are registered with the ICO under number Z7124610.

2. What data do we collect?

Website and cookies

  • A cookie is a small file which asks permission to be placed on your computer's hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or identify you when you visit a particular site. Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences.
  • Overall, cookies help us provide you with a better website by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.
  • We may use some cookies without consent where they are strictly necessary or used for limited statistical purposes to improve website functionality. You will always be given clear information and the option to opt out where required.
  • You can accept, set your preferences or deny all the cookies that we use by clicking on the buttons displayed on our cookie banner.
  • You can amend your settings or withdraw your consent for cookies at any time by clicking on the small black floating Cookies Settings button on the bottom right of our webpages.
  • If you provide feedback, we will only use it to develop and improve the site. We do not store feedback, but analysis of feedback may be kept.

Legal basis for processing, we process personal data where:

  • You have given consent
  • It is required for legal obligations
  • It is in our legitimate interests, or
  • It meets a recognised legitimate interest, including:
  • Safeguarding individuals
  • Preventing or detecting crime
  • Responding to emergencies
  • Supporting public authorities
  • Protecting services and individuals from harm
  • Where recognised legitimate interest applies, we ensure processing is necessary and proportionate.

3. Children and young people

infoKID is designed for children, young people and families.

Where we know a user is under 18:

  • We seek parental/ guardian consent where appropriate
  • We apply enhanced safeguards to ensure data is handed appropriately for their age

We take extra care to protect children’s rights and interests.

Legal basis: explicit consent.

4. How we use your personal data

We use personal data to:

  • Provide and improve website content
  • Respond to enquiries
  • Support users and improve experience
  • Analyse website performance
  • Ensure safeguarding and security

We will only use data in ways that are compatible with the original purpose it was collected for.

5. Automated decision-making

We do not normally use automated decision-making.

If we ever do:

  • You will be informed
  • Safeguards will apply
  • You can request human review and challenge decisions

We will not use automated decision-making with sensitive data unless legally permitted.

6. Keeping your information safe

Your privacy is important to us, so we’ll always keep your details secure.

We use secure systems and procedures to protect your data.

We:

  • Implement physical, electronic and organisational safeguards
  • Review cyber security regularly
  • Restrict access to authorised personnel

We only share data with trusted partners acting on our behalf, under strict agreements.

If data is transferred outside the UK, we ensure equivalent protection standards are in place.

We will never sell or share your personal information with third party organisations so that they can contact you for any marketing activity

7. Your Data Rights

  • Under data protection law, you have rights including:
  • Your right of access - You have the right to ask us for copies of your personal information.
  • Your right to rectification - You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.
  • Your right to erasure - You have the right to ask us to erase your personal information in certain circumstances.
  • Your right to restriction of processing - You have the right to ask us to restrict the processing of your personal information in certain circumstances.
  • Your right to object to processing - You have the right to object to the processing of your personal information in certain circumstances.
  • Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.
  • You are not required to pay any charge for exercising your rights. If you make a request, we will respond to you within one calendar month, which may be extended where legally permitted. We may ask for ID to confirm your request.
  • If at any time you want to update, amend or remove your personal data, please contact us in one of the following ways:
    • By email [email protected]
    • Via the website at www.kidneycareuk.org
    • Call 01420 541424
    • Write to our Data Protection Officer at Kidney Care UK, 3. The Windmills, St Mary’s Close, Alton, GU34 1EF.

8. How to complain

You have the right to complain if you believe your data has not been handled correctly.

We encourage you to contact us first:

  • We will acknowledge your complaint
  • Investigate promptly
  • Keep you informed
  • Provide a response without undue delay

Please contact us using the contact details above.

In you feel that your complaint is unresolved you can contact the Information Commissioner’s Office (ICO):

  • Wycliffe House, Water Lane, Wilmslow, SK9 5AF
  • Helpline: 0303 123 1113
  • Website: www.ico.org.uk

8. Making this policy great and updates

  • Well done for getting to the bottom of this policy! We have designed it to be as transparent, useful and engaging as possible and we would love to hear your feedback on how we can make it even better; please contact us at [email protected].
  • Please don’t make this the last time you read it as we will review this policy at least once a year to make sure it is up to date and accurate. As a result, we may need to make changes to the policy, which will be posted on our website or for any significant changes we will of course notify you by email.