Find out about the symptoms, diagnosis, treatment and sources of further information and support for atypical Haemolytic Uraemic Syndrome (aHUS) in the rare renal section of the Kidney Care UK website.
Living with aHUS
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Families, Kidney conditions and diagnosis, Living with kidney disease, Rare renal, Stage 5 CKD (Kidney failure)
Layla's story: living with aHUS
Layla was diagnosed with aHUS, a rare renal condition. When she is not visiting the Great North Children's Hospital for infusions, she is riding bikes and winning dance competitions.
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Families, Kidney conditions and diagnosis, Living with kidney disease, Rare renal
Heidi's story: living with aHUS
Heidi was diagnosed with a rare kidney condition at just three weeks old. She has blood infusions to keep her alive, but nothing stops her – her life is filled with family, friends and sports she loves.
Working with healthcare professionals, patients and caregivers, Alexion UK has produced an interactive adventure storybook for children with a diagnosis of aHUS to help them better understand the condition. The storybook is hosted on the Healthinote platform.
