If your child is diagnosed with AVP resistance, they will be referred to a hospital to see a paediatric nephrologist, a doctor who treats children with kidney problems.

If your child becomes very dehydrated, they may need to be admitted to hospital so that their healthcare team can monitor how much they drink and how much urine they produce.

Your healthcare team may recommend that your child makes some changes to what they eat so that the kidneys produce less urine. Your child’s healthcare team will give you more information on this if it applies to your child. Do not restrict your child’s diet without advice from your healthcare team.

Your doctor may prescribe medications called thiazide diuretics which help the body hold on to more water so less is lost as urine. This reduces the amount of urine that your child produces.

Your child will have regular check-ups with their kidney team to monitor their health.

About the future

Your child will need ongoing monitoring to manage any symptoms and prevent complications. With treatment, lasting kidney damage is rare.

Your child will be able to do all of the things that other children their age do. They can go to nursery and school and can play with other children and stay active.

Your healthcare team will speak with you and your family about any long-term effects.

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